Ways Patients Have Partnered in Research 

Learning from and with research teams:  

• Attending & participating in research team meetings  

• Learning about research, biomanufacturing, and cell therapies 

Providing expert advice and insights to research teams:  

• Sharing about living with cancer, including treatments  

• Reviewing research materials, i.e., informed consent, patient-facing materials  

• Writing letters of support (i.e. Research Ethics Board)  

• Recommending ways to reduce or remove barriers to patient participation  

• Explaining patient preferences and needs to inform methods and resources  

• Identifying & explaining patient-driven clinically-relevant endpoints 

 Co-developing with research teams:  

• Research questions, including trial inclusion/exclusion criteria  

• Research information materials for trial participants, including informed consent  

• Knowledge mobilization strategies and materials  

• (Co-)Presenting of research findings 

Leading as members of research teams:  

• Evaluating ongoing research and providing continuous advice  

• Creating lay summaries  

• Advising as a member of the research oversight committee  

• Recruiting patients for studies, as partners in research and trial participants  

• Providing peer support to clinical trial participants